How to compensate patient partners, and under what circumstances, has long been a topic of debate among patient partners, researchers, and engagement professionals. Join us as we speak with Zal Press and Dawn P. Richards, co-authors (with Isabel Jordan and Kimberly Strain) of “Patient partner compensation in research and health care: the patient perspective on why and how.” They share their experiences and perspectives as long-time patient partners on both organizational committees and health research projects.
In this fascinating exploration with Zal and Dawn, we talk through some big ideas: patients conceptualized as part of the healthcare workforce; the historical roots of healthcare as a faith-based charitable enterprise; how patient partners are shouldering the burden for having awkward conversations about compensation; that compensation doesn’t fix communication issues… and so much more!
Mentioned in this episode:
- Patient partner compensation in research and health care: the patient perspective on why and how, Richards et al
- Medieval Healthcare and the Rise of Charitable Institutions: The History of the Municipal Hospital, by Tiffany A. Ziegler
- Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness, May et al
- Understanding the motivations of patients: A co‐designed project to understand the factors behind patient engagement, McCarron et al